purplerabbit (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
purplerabbit) wrote2005-05-12 08:22 pm
purplerabbit) wrote2005-05-12 08:22 pm
(no subject)
Today is National Fibromyalgia Awareness Day.
You know someone with Fibromyalgia. I have Fibromyalgia.
So in honor of Fibro Awareness, I thought I would update folks on my currrent condition.
Research indicates that people may have a genetic predisposition to the condition which is triggered into an active state by a severe physical and/or emotional trauma. I experienced the onset of the disease after being dragged by a car by my ex seven years ago this May 31. The assault and the loss of custody of our son (and the ugly battle around it all) definitely fits the description and the history of illness in my life. Over the course of several years, my condition went through a pretty severe decline and reached the worst of it after my leg break a year and half ago.
Those who haven't been around me in a while and for those who have only known me in the last years, may have completely different pictures of who I am. I heard recently that I am considered somewhat of a recluse. That will shock the people who knew me before the condition was triggered. I have had to alter the way I live to elimiate as much stress as possible and to be flexible in almost every area of my life. I cannot make plans without taking into account that there is only a 50/50 chance that I will be able to function well enough to attend the event or do the task at any given point. It makes me seem flaky and solitary I suppose. It isn't my choice though. I use to be quite the fireball of energy and activity, as old friend can certainly attest to. I miss the high energy and the active social life.
The good news is that I have been taking a medication in the last few months that has made some improvements. While the extreme fatigue, restless leg syndrome and other strange symptoms are still with me, the sleep disorder and extreme joint/muscle pain is much lessened by the Effexor I have been taking the last couple months. It is not a cure, but it is certainly been helpful.
My next goal is to work on regulating my sleep periods and to get more regular gentle exercise. I would like to get into yoga and, hopefully, dance/martial arts again. I read a great deal and try to keep up with current research. I am hoping more breakthroughs will help me regain more of the life I had to give up. Meanwhile, I continue to write and maintain a gentle, quiet life with social activity when I can.
Remember the adage that you should be careful what you ask for, you might get it. I even taught that when I taught magic classes. Well, I use to say that I never had enough time to read and write. The strange side effect of all this is that I spent a large percentage of my time reading and writing now.
I want to thank all the friends and family who have and who continue to be supportive and loving. Whether I am able to show it or not sometimes, I appreciate all my friends and family.
You know someone with Fibromyalgia. I have Fibromyalgia.
So in honor of Fibro Awareness, I thought I would update folks on my currrent condition.
Research indicates that people may have a genetic predisposition to the condition which is triggered into an active state by a severe physical and/or emotional trauma. I experienced the onset of the disease after being dragged by a car by my ex seven years ago this May 31. The assault and the loss of custody of our son (and the ugly battle around it all) definitely fits the description and the history of illness in my life. Over the course of several years, my condition went through a pretty severe decline and reached the worst of it after my leg break a year and half ago.
Those who haven't been around me in a while and for those who have only known me in the last years, may have completely different pictures of who I am. I heard recently that I am considered somewhat of a recluse. That will shock the people who knew me before the condition was triggered. I have had to alter the way I live to elimiate as much stress as possible and to be flexible in almost every area of my life. I cannot make plans without taking into account that there is only a 50/50 chance that I will be able to function well enough to attend the event or do the task at any given point. It makes me seem flaky and solitary I suppose. It isn't my choice though. I use to be quite the fireball of energy and activity, as old friend can certainly attest to. I miss the high energy and the active social life.
The good news is that I have been taking a medication in the last few months that has made some improvements. While the extreme fatigue, restless leg syndrome and other strange symptoms are still with me, the sleep disorder and extreme joint/muscle pain is much lessened by the Effexor I have been taking the last couple months. It is not a cure, but it is certainly been helpful.
My next goal is to work on regulating my sleep periods and to get more regular gentle exercise. I would like to get into yoga and, hopefully, dance/martial arts again. I read a great deal and try to keep up with current research. I am hoping more breakthroughs will help me regain more of the life I had to give up. Meanwhile, I continue to write and maintain a gentle, quiet life with social activity when I can.
Remember the adage that you should be careful what you ask for, you might get it. I even taught that when I taught magic classes. Well, I use to say that I never had enough time to read and write. The strange side effect of all this is that I spent a large percentage of my time reading and writing now.
I want to thank all the friends and family who have and who continue to be supportive and loving. Whether I am able to show it or not sometimes, I appreciate all my friends and family.