purplerabbit: Dany at Pcon (Default)
purplerabbit ([personal profile] purplerabbit) wrote2002-10-15 12:25 pm

Why doesn't she respond?

I am posting part of a letter I sent to someone because it actually could apply to a dozen folks right now...

"I have tried to respond several times. Problem is that I never have more than a couple minutes to sit at the computer. I get up between 8-9 AM every morning, fall into bed at about 2-3 AM, get up at lease once in that 6 hour time to handle a bed pan. I haven't posted to my live journal in weeks for the same reason. I have almost daily migraines, my whole body aches and I am always tired. (Also, the web server has been intermittently down as well.) In addition, Troy has been sick as well with a severe allergic reaction to something. It means that only that which is urgent gets my attention at this point. I am glad you are wanting to help. I just haven't had the bandwidth to respond.

I would like to talk to you, but it would be best to call me. I am dyslexic and rarely spend much time writing people. (There is a section about this on our website.) It takes me an hour to compose a message like this. Of course, if you call, be prepared to be told I am in the middle of a bed pan, or a visiting nurse appointment, or some other chore that has to be now. I usually will ask someone to call back in a half hour if that happens."

I am grateful for those who have written with ideas and suggestions. And for those who have come over and helped. And for those who have sent care packages. I just don't know how to manage with so very very much to do and no time to do it.

I was suppose to have Friday off for a date with Lon. We ended up having to care for mom later than expected. Alura was gone Friday and Saturday. Troy, who was suppose to watch mom, took an allergy pill and promptly fell asleep. And Troy sleeps like the dead. So Lon and I were able to catch a late movie, but no real down time other than that.

Then we were suppose to go to a party Saturday night. We couldn't find care for mom, so Troy was going to make up for it by watching mom while Lon and I went. Troy had a mini-seizure. We stayed home again.

Then we were suppose to go to Ren Faire with a friend. We found ourselves overdrawn again with no money for groceries let alone Ren Faire. Plus Troy was still sick. So we stayed home and worked more.

I don't remember when I had an entire evening that I wasn't working except when I was sleeping. I have so much I am behind in. More paperwork for mom's medical care and bills. A dozen calls that should have been made last week. A dozen forms that should have been filled out. A mess that should have been cleaned. A dozen things that should have been fixed. I want to cry but I just don't have the time or energy.